Ella's Touch - Sneak peak

Sooo cute!  I'm in love with this little cutie sporting the wild waves & awesome long dark eyelashes!  

Ella's Touch is a fabulous blog about a special baby girl.  I am so happy I was able to spend a couple hours with her and her family yesterday.  Tiffany {mom} was so sweet she even sent me home with some fabulous chicken taco soup.  My twins loved it!

Ella will not be with us much longer as her life is being cut short by medical complications to her very rare syndrome, Cornelia de Lange Syndrome (CDLS).  I've been reading the blog her father, Chris, started just after her birth called Ella's Touch.    

She is so sweet.  It is amazing that she has been able to come home to spend quality time with her family.  Otherwise big brother & sister would have little chance to get to know her.  

Ella prefers to be laying on her own most of the time.  She did not want us to do any holding poses.  The couple times we tried she definitely let us know her preferences.    

This picture speaks volumes to me.  All of the beautiful family connections showing & being created.  The serene faces of Tiffany & Chris as they look at the kids shows their tender love for the kiddos.  There is Ethan's hesitant hand out to touch Ella's bow.  Since he was a little sick yesterday, he was very firm about not getting too close to avoid possibly getting her sick too.  Maya glanced away for a second from her contemplation of Ella from her spot on the floor by daddy's feet while holding mama's hand.